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#MyKidneysMyLife:

Meet Three Of Our “Advocates Creating Change”

[/vc_column_text][vc_column_text css=”.vc_custom_1580226601833{padding-top: 10px !important;background-color: #ffffff !important;}”]On March 16th and 17th, 2020, approximately 125 advocates from kidney organizations around the country will attend the 7th Annual Kidney Patient Summit, organized and led by the National Kidney Foundation. These “Advocates Creating Change” will educate Members of Congress and their staff about the importance of protecting living organ donors, extending Medicare coverage of immunosuppressive medications for kidney transplant recipients and increasing support for kidney research and programs. Meet three of our advocates from this year’s Kidney Patient Summit.[/vc_column_text][/vc_column_inner][/vc_row_inner][vc_row_inner row_type=”row” type=”grid” text_align=”left” background_color=”#ffffff” padding_top=”15″ padding_bottom=”20″ css_animation=””][vc_column_inner width=”1/3″ css=”.vc_custom_1487193812948{padding-top: 10px !important;padding-bottom: 10px !important;background-color: #ffffff !important;}”][vc_single_image image=”103602″ alignment=”center” qode_css_animation=”” css=”.vc_custom_1579297919377{padding-top: 10px !important;padding-bottom: 20px !important;}”][vc_text_separator title=”DORIS LEW” border=”no”][vc_column_text css=”.vc_custom_1580226666319{padding-top: 10px !important;padding-bottom: 10px !important;}”]Doris is a wife, a mother of two teenage boys and a transplant recipient. She educates others about the importance of getting their kidneys checked, advocating for themselves and maintaining a healthy lifestyle.[/vc_column_text][/vc_column_inner][vc_column_inner width=”1/3″ css=”.vc_custom_1487193764807{padding-top: 10px !important;padding-bottom: 10px !important;background-color: #ffffff !important;}”][vc_single_image image=”103600″ alignment=”center” qode_css_animation=”” css=”.vc_custom_1579297758016{padding-top: 10px !important;padding-bottom: 20px !important;}”][vc_text_separator title=”IRA POTTER” border=”no”][vc_column_text css=”.vc_custom_1580243523379{padding-top: 10px !important;padding-bottom: 10px !important;}”]Ira donated a kidney to his wife and has been a member of the advisory board of the NKF in Missouri since 2015. After donating, he was initially denied life insurance and later, once a policy was finally approved, he was charged outrageous rates all because he was an organ donor.  Hear his story.[/vc_column_text][/vc_column_inner][vc_column_inner width=”1/3″ css=”.vc_custom_1487191946322{padding-top: 10px !important;padding-bottom: 10px !important;}”][vc_single_image image=”103601″ alignment=”center” qode_css_animation=”” css=”.vc_custom_1579297818056{padding-top: 10px !important;padding-bottom: 20px !important;}”][vc_text_separator title=”BOBBIE REED” border=”no”][vc_column_text css=”.vc_custom_1580226733801{padding-top: 10px !important;padding-bottom: 10px !important;}”]Bobbie Reed is on a mission for her son Alex, who developed kidney disease after graduating from college. Alex was fortunate to receive a non-directed kidney donation, but struggles to afford the medications he needs to maintain his lifesaving kidney.  Hear their story.[/vc_column_text][/vc_column_inner][/vc_row_inner][vc_row_inner row_type=”row” type=”full_width” text_align=”left” background_color=”#ffffff” padding_top=”10″ padding_bottom=”15″ css_animation=””][vc_column_inner][vc_column_text]

Don’t Miss Events At This Year’s Summit

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CMS To Present On Kidney Initiatives

[/vc_column_text][vc_column_text css=”.vc_custom_1580755196150{padding-top: 10px !important;}”]The Centers for Medicare and Medicaid Services (CMS) will be presenting to advocates at the 7th Annual Kidney Patient Summit and seeking their feedback about kidney donation initiatives being drafted.[/vc_column_text][/vc_column_inner][vc_column_inner width=”1/3″][vc_single_image image=”103819″ img_size=”large” alignment=”center” onclick=”custom_link” img_link_target=”_blank” qode_css_animation=”” link=”https://www.facebook.com/AngelicaHaleMusic/videos/1773917625973334/”][/vc_column_inner][/vc_row_inner][vc_row_inner row_type=”row” type=”grid” text_align=”left” background_color=”#dddddd” padding_top=”30″ padding_bottom=”40″ css_animation=”” css=”.vc_custom_1580756145268{background-color: #e8e8e8 !important;}”][vc_column_inner width=”2/3″][vc_column_text]

NKF’s Richard K. Salick Advocacy Award 

[/vc_column_text][vc_column_text css=”.vc_custom_1580226752871{padding-top: 10px !important;}”]Each year, the National Kidney Foundation presents the Richard K. Salick Advocacy Award to an outstanding kidney patient advocate. This prestigious award is given to an individual who embodies the spirit of NKF’s dear friend and former colleague, Rich Salick, a former pro-surfer who underwent three kidney transplants and faced cancer, but still put the needs of other kidney patients ahead of his own.[/vc_column_text][/vc_column_inner][vc_column_inner width=”1/3″][vc_single_image image=”4663″ img_size=”medium” alignment=”center” qode_css_animation=””][/vc_column_inner][/vc_row_inner][vc_row_inner row_type=”row” type=”grid” text_align=”left” background_color=”#dddddd” padding_top=”30″ padding_bottom=”20″ css_animation=”” css=”.vc_custom_1580756151635{background-color: #e8e8e8 !important;}”][vc_column_inner width=”2/3″][vc_column_text]

World Kidney Day Congressional Reception

[/vc_column_text][vc_column_text css=”.vc_custom_1580241968220{padding-top: 10px !important;}”]The World Kidney Day Congressional Reception will be held on March 11th to kick off World Kidney Day and the Kidney Patient Summit the following week.  NKF will be presenting awards to two members of Congress to recognize their outstanding support of NKF and the kidney community.

 

More information on 2020’s World Kidney Day Congressional Reception will be available shortly.[/vc_column_text][/vc_column_inner][vc_column_inner width=”1/3″][vc_single_image image=”4969″ img_size=”medium” alignment=”center” onclick=”custom_link” img_link_target=”_blank” qode_css_animation=”” link=”https://www.facebook.com/AngelicaHaleMusic/videos/1773980399300390/”][/vc_column_inner][/vc_row_inner][vc_row_inner row_type=”row” type=”full_width” text_align=”left” background_color=”#ffffff” css_animation=””][vc_column_inner][vc_empty_space height=”30px”][vc_column_text]

Advocacy and Training Materials

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2020 Preliminary Summit Agenda

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Fact Sheet: Living Donor Protection Act

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Fact Sheet: Comprehensive Immunosuppressive Drug Coverage for Kidney Transplant Patients Act

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Congressional “Dear Colleague” on HR 5534

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CKD: The Basics

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Social Media Guide

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Legislator Social Media Accounts

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Map of Capitol Hill

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Steps to a Successful Meeting

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Finding Yes on Capitol Hill

[/vc_column_text][/vc_column_inner][/vc_row_inner][vc_row_inner row_type=”row” type=”full_width” text_align=”left” background_color=”#f6f6f6″ padding_top=”40″ padding_bottom=”10″ css_animation=”” css=”.vc_custom_1551216629268{margin-left: 30px !important;background-color: #ffffff !important;}”][vc_column_inner width=”1/3″ css=”.vc_custom_1550629054444{background-color: #ffffff !important;}”][/vc_column_inner][vc_column_inner width=”1/3″ css=”.vc_custom_1550629047268{background-color: #ffffff !important;}”][button size=”large” icon=”” target=”_self” hover_type=”default” text_align=”right” text=”Join Us By Becoming An Advocate” link=”https://nkfsand.sparkinfluence.net/become-an-advocate/” background_color=”#fc6d00″][/vc_column_inner][vc_column_inner width=”1/3″ css=”.vc_custom_1550629061444{background-color: #ffffff !important;}”][/vc_column_inner][/vc_row_inner][vc_row_inner row_type=”row” type=”full_width” text_align=”left” background_color=”#ffffff” css_animation=”” css=”.vc_custom_1580756230114{padding-top: 20px !important;}”][vc_column_inner][vc_column_text css=”.vc_custom_1579734872621{padding-top: 40px !important;padding-bottom: 25px !important;background-color: #ffffff !important;}”]

The 2019 Kidney Patient Summit in Photos

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Click to see the website for 2019’s 6th Annual Kidney Patient Summit.

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Join the Conversation on Social Media with #MyKidneysMyLife

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Click the button below to Tweet!

[/vc_column_text][vc_empty_space height=”20px”][vc_raw_html]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[/vc_raw_html][vc_empty_space height=”20px”][vc_raw_html]JTNDYSUyMGNsYXNzJTNEJTIydHdpdHRlci10aW1lbGluZSUyMiUyMGRhdGEtaGVpZ2h0JTNEJTIyNTAwJTIyJTIwaHJlZiUzRCUyMmh0dHBzJTNBJTJGJTJGdHdpdHRlci5jb20lMkZOS0ZfQWR2b2NhY3klM0ZyZWZfc3JjJTNEdHdzcmMlMjU1RXRmdyUyMiUzRVR3ZWV0cyUyMGJ5JTIwTktGX0Fkdm9jYWN5JTNDJTJGYSUzRSUyMCUzQ3NjcmlwdCUyMGFzeW5jJTIwc3JjJTNEJTIyaHR0cHMlM0ElMkYlMkZwbGF0Zm9ybS50d2l0dGVyLmNvbSUyRndpZGdldHMuanMlMjIlMjBjaGFyc2V0JTNEJTIydXRmLTglMjIlM0UlM0MlMkZzY3JpcHQlM0U=[/vc_raw_html][/vc_column_inner][vc_column_inner width=”1/2″][vc_column_text css=”.vc_custom_1488464416387{padding-bottom: 20px !important;}”]Follow live Summit coverage on the NKF Advocacy Action Blog.[/vc_column_text][vc_single_image image=”80″ img_size=”medium” alignment=”center” style=”vc_box_border” onclick=”custom_link” img_link_target=”_blank” qode_css_animation=”” link=”https://nkfadvocacy.wordpress.com/” css=”.vc_custom_1487967245932{padding-top: -20px !important;border-radius: 10px !important;}”][/vc_column_inner][/vc_row_inner][/vc_column][vc_column css=”.vc_custom_1580755768576{padding-bottom: 50px !important;background-color: #ffffff !important;}”][vc_row_inner row_type=”row” type=”full_width” text_align=”left” css_animation=””][vc_column_inner][vc_column_text]

Thank you to our partner organizations

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Thank you to our generous sponsor:

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