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Inspiring Action for Kidney Disease
#My Kidneys, My Life:
Meet Our Advocates
[/vc_column_text][vc_column_text css=”.vc_custom_1520886056012{padding-top: 10px !important;background-color: #ffffff !important;}”]On March 5 and 6, nearly 100 advocates from five kidney organizations around the country converged on Capitol Hill to “Inspire Change for Kidney Disease,” meet with lawmakers and put a human face on kidney disease during the 5th Annual Kidney Patient Summit, organized by the National Kidney Foundation. Participants were united by a mission to educate Congress about the importance of early detection and treatment of chronic kidney disease (CKD), living organ donation, and supporting CKD research and programs. Meet three of our advocates.[/vc_column_text][/vc_column_inner][/vc_row_inner][vc_row_inner row_type=”row” type=”grid” text_align=”left” background_color=”#ffffff” padding_top=”15″ padding_bottom=”20″ css_animation=””][vc_column_inner width=”1/3″ css=”.vc_custom_1487193812948{padding-top: 10px !important;padding-bottom: 10px !important;background-color: #ffffff !important;}”][vc_single_image image=”4653″ img_size=”medium” alignment=”center” qode_css_animation=”” css=”.vc_custom_1516725723978{padding-top: 10px !important;padding-bottom: 20px !important;}”][vc_text_separator title=”Curtis Warfield” border=”no”][vc_column_text css=”.vc_custom_1516914590302{padding-top: 10px !important;padding-bottom: 10px !important;}”]Curtis was diagnosed in 2013 with FSGS and received the “gift of life”– a transplant from his daughter’s college sorority sister – in 2016. Curtis has become very passionate in advocating CKD awareness and organ donation with NKF and the Indiana Donor Network.[/vc_column_text][vc_column_text css=”.vc_custom_1520633089895{padding-top: 20px !important;}”]Meet some of our advocates inspiring action for chronic kidney disease.[/vc_column_text][/vc_column_inner][vc_column_inner width=”1/3″ css=”.vc_custom_1487193764807{padding-top: 10px !important;padding-bottom: 10px !important;background-color: #ffffff !important;}”][vc_single_image image=”4651″ img_size=”medium” alignment=”center” qode_css_animation=”” css=”.vc_custom_1516725713154{padding-top: 10px !important;padding-bottom: 20px !important;}”][vc_text_separator title=”Mary Baliker” border=”no”][vc_column_text css=”.vc_custom_1516914678623{padding-top: 10px !important;padding-bottom: 10px !important;}”]Mary was diagnosed with CKD at the age of nine, and has since received dialysis and four kidney transplants. She serves on the NKF Kidney Advocacy Committee, as well as UNOS’ Patient Affairs Committee. She’s also an author of a book that helps pediatric patients learn more about CKD.[/vc_column_text][/vc_column_inner][vc_column_inner width=”1/3″ css=”.vc_custom_1487191946322{padding-top: 10px !important;padding-bottom: 10px !important;}”][vc_single_image image=”4652″ img_size=”large” alignment=”center” qode_css_animation=”” css=”.vc_custom_1516725696984{padding-top: 10px !important;padding-bottom: 20px !important;}”][vc_text_separator title=”Cynthia Infante” border=”no”][vc_column_text css=”.vc_custom_1516914737912{padding-top: 10px !important;padding-bottom: 10px !important;}”]Cynthia received her diagnosis at 15, went on dialysis at 19, and has received two kidney transplants since then. A healthcare practitioner, she understands the impact of CKD from both the patient and provider points of view, serving as a patient mentor to help others cope with their diagnosis.[/vc_column_text][/vc_column_inner][/vc_row_inner][vc_row_inner row_type=”row” type=”full_width” text_align=”left” background_color=”#ffffff” padding_top=”10″ padding_bottom=”15″ css_animation=””][vc_column_inner][vc_column_text]
Don’t Miss
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Facebook Live CKD Interview in Congress
[/vc_column_text][vc_column_text css=”.vc_custom_1520885563550{padding-top: 10px !important;}”]Watch Angelica Hale, NKF’s Kid Ambassador and kidney transplant recipient, lead a Facebook Live Q&A on chronic kidney disease like a seasoned journalist with Congressman Bill Posey (R-FL) and Congresswoman Jaime Herrera-Beutler (R-WA). Click here to watch![/vc_column_text][/vc_column_inner][vc_column_inner width=”1/3″][vc_single_image image=”4967″ img_size=”medium” alignment=”center” onclick=”custom_link” img_link_target=”_blank” qode_css_animation=”” link=”https://www.facebook.com/AngelicaHaleMusic/videos/1773917625973334/”][/vc_column_inner][/vc_row_inner][vc_row_inner row_type=”row” type=”grid” text_align=”left” background_color=”#dddddd” padding_top=”30″ padding_bottom=”20″ css_animation=””][vc_column_inner width=”2/3″][vc_column_text]
World Kidney Day Congressional Reception
[/vc_column_text][vc_column_text css=”.vc_custom_1520885087415{padding-top: 10px !important;}”]The World Kidney Day Congressional Reception, with special guest Angelica Hale, was held in conjunction with the 5th Annual Kidney Patient Summit and as a kick-off to World Kidney Day. Held at the Reserve Officers Association’s Top of the Hill (One Constitution Ave., NE) from 6:00 pm to 7:30 pm, we honored congressional champions’ of efforts to promote early detection and treatment of chronic kidney disease. Click here to watch video of Angelica Hale singing at the reception![/vc_column_text][/vc_column_inner][vc_column_inner width=”1/3″][vc_single_image image=”4969″ img_size=”medium” alignment=”center” onclick=”custom_link” img_link_target=”_blank” qode_css_animation=”” link=”https://www.facebook.com/AngelicaHaleMusic/videos/1773980399300390/”][/vc_column_inner][/vc_row_inner][vc_row_inner row_type=”row” type=”grid” text_align=”left” background_color=”#dddddd” padding_top=”30″ padding_bottom=”40″ css_animation=””][vc_column_inner width=”2/3″][vc_column_text]
NKF’s Richard K. Salick Advocacy Award
[/vc_column_text][vc_column_text css=”.vc_custom_1521041124614{padding-top: 10px !important;}”]Join us in congratulating Haley Newkirk, from Colorado, on winning this year’s Richard K. Salick Advocacy Award. This prestigious award is presented an individual who embodies the spirit of NKF’s dear friend, Rich Salick, a former pro surfer who underwent three kidney transplants, faced cancer, but still put the needs of other kidney patients ahead of his own.
Haley went on dialysis at 14 and is a transplant recipient. A leader among NKF’s Kidney Advocacy Committee, she is a tenacious advocate for kidney patients across the country working to educate lawmakers about kidney disease, legislative priorities, and to help empower fellow kidney patients to make a difference in their lives.[/vc_column_text][/vc_column_inner][vc_column_inner width=”1/3″][vc_single_image image=”4968″ img_size=”medium” alignment=”center” qode_css_animation=””][/vc_column_inner][/vc_row_inner][vc_row_inner row_type=”row” type=”full_width” text_align=”left” background_color=”#f6f6f6″ padding_top=”40″ padding_bottom=”10″ css_animation=””][vc_column_inner][vc_column_text css=”.vc_custom_1487265311031{padding-top: 10px !important;padding-bottom: 30px !important;}”]
Advocacy and Training Materials
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Lawmaker Social Media Accounts
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CKD: The Basics
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Living Donor Protection Act Fact Sheet
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H.R. 1270 Dear Colleague Letter
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CKD Early Detection and Management Fact Sheet
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H.R. 3867 Dear Colleague Letter
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Appropriations Fact Sheet
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Congressional Kidney Caucus Roster
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Congressional Organ and Tissue Donation Awareness Caucus
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Map of Capitol Hill
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Steps to a Successful Meeting
[/vc_column_text][/vc_column_inner][/vc_row_inner][vc_row_inner row_type=”row” type=”full_width” text_align=”center” padding_top=”30″ padding_bottom=”30″ css_animation=””][vc_column_inner][button size=”large” icon=”” target=”_self” hover_type=”default” text_align=”center” text=”Join Us And Become An Advocate” link=”https://nkfsand.sparkinfluence.net/become-an-advocate/” background_color=”#fc6d00″][/vc_column_inner][/vc_row_inner][vc_row_inner row_type=”row” type=”full_width” text_align=”left” background_color=”#ffffff” css_animation=”” css=”.vc_custom_1487266477447{padding-top: 20px !important;}”][vc_column_inner][vc_column_text css=”.vc_custom_1520889262258{padding-top: 40px !important;padding-bottom: 25px !important;background-color: #ffffff !important;}”]
2018 Summit in Photos
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Click to see the website for 2017’s 4th Annual Kidney Patient Summit.
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Join the Conversation: #MyKidneysMyLife
[/vc_column_text][/vc_column_inner][/vc_row_inner][vc_row_inner row_type=”row” type=”grid” text_align=”center” background_color=”#ffffff” css_animation=””][vc_column_inner width=”1/2″][vc_raw_html]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[/vc_raw_html][/vc_column_inner][vc_column_inner width=”1/2″][vc_column_text css=”.vc_custom_1488464416387{padding-bottom: 20px !important;}”]Follow live Summit coverage on the NKF Advocacy Action Blog.[/vc_column_text][vc_single_image image=”80″ img_size=”medium” alignment=”center” style=”vc_box_border” onclick=”custom_link” img_link_target=”_blank” qode_css_animation=”” link=”https://nkfadvocacy.wordpress.com/” css=”.vc_custom_1487967245932{padding-top: -20px !important;border-radius: 10px !important;}”][/vc_column_inner][/vc_row_inner][vc_row_inner row_type=”row” type=”grid” text_align=”left” background_color=”#ffffff” css_animation=””][vc_column_inner][vc_column_text css=”.vc_custom_1487268228921{padding-top: 50px !important;padding-bottom: 40px !important;}”]
Thank you to our partner organizations
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Thank you to our generous sponsors:
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