2019 Summit Social Media Toolkit

[vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_row_inner row_type=”row” type=”grid” text_align=”left” background_color=”#ffffff” padding_bottom=”15″ css_animation=””][vc_column_inner width=”2/3″][vc_empty_space][vc_column_text]Welcome, kidney advocates! This toolkit will help you extend your advocacy outreach using social media during the 2019 Kidney Patient Summit.[/vc_column_text][vc_empty_space height=”20″][vc_column_text]This year’s Summit theme, “Inspiring Action for Kidney Disease,” aims to influence the Capitol Hill to act on behalf of the 30 million people living with kidney disease. Our hashtag, #MyKidneysMyLife,  sends a strong message that kidneys are vital organs that sustain life. Help make it a success by using social media to garner attention from lawmakers and the public.

 

Not joining us as an advocate at the 6th Annual Kidney Patient Summit?  Join our advocates in inspiring change by asking your friends and family to join you in writing your legislators about kidney disease.[/vc_column_text][/vc_column_inner][vc_column_inner width=”1/3″][vc_single_image image=”1443″ img_size=”full” qode_css_animation=””][/vc_column_inner][/vc_row_inner][/vc_column][/vc_row][vc_row css_animation=”” row_type=”row” use_row_as_full_screen_section=”no” type=”full_width” angled_section=”no” text_align=”left” background_image_as_pattern=”without_pattern”][vc_column][vc_accordion style=”accordion”][vc_accordion_tab title=”Hashtag: #MyKidneysMyLife” title_color=”#f15e22″][vc_column_text]Use the hashtag #MyKidneysMyLife with all your social media activity during the Summit to help us build awareness around the hashtag, and track responses and outreach to government officials.[/vc_column_text][/vc_accordion_tab][vc_accordion_tab title=”Message Points” title_color=”#f15e22″][vc_row_inner row_type=”row” type=”full_width” text_align=”left” css_animation=””][vc_column_inner][vc_column_text css=”.vc_custom_1487363666675{padding-bottom: 20px !important;}”]The following are three actionable items we’ll be asking the lawmakers for. Use these message points in your social media activity.[/vc_column_text][/vc_column_inner][/vc_row_inner][vc_row_inner row_type=”row” type=”full_width” text_align=”left” css_animation=””][vc_column_inner width=”1/3″][vc_column_text]Living Donor Protection Act:

Prohibit discrimination in the availability, coverage limit, or price of life, disability or long-term care insurance for living donors and add living donation to the Family and Medical Leave Act (FMLA).[/vc_column_text][/vc_column_inner][vc_column_inner width=”1/3″][vc_column_text]Extending Medicare coverage for Immunosuppressive Medication:
Transplant recipients need these drugs to maintain their kidney and lower risk of rejection. Medicare covers immunosuppressants for only 36 months post-transplant, leaving many recipients struggling to find affordable coverage. Extending Medicare coverage for immunosuppressive medications indefinitely ensures patients have access to these lifesaving medications.[/vc_column_text][/vc_column_inner][vc_column_inner width=”1/3″][vc_column_text]Appropriations:

Increase funding in Fiscal Year 2020 for: CDC’s Division of Diabetes Translation’s (DDT) CKD Surveillance Project; the Health Resources and Services
Administration’s (HRSA) Division of Transplantation and Bureau of Primary Care; the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK); and KidneyX, the Kidney Innovation Accelerator.[/vc_column_text][/vc_column_inner][/vc_row_inner][/vc_accordion_tab][vc_accordion_tab title=”Twitter Tips” title_color=”#f15e22″][vc_column_text css=”.vc_custom_1549059258154{margin-left: 20px !important;padding-bottom: 2px !important;}”]

  1. Follow each of your lawmakers on Twitter. Find your legislators’ social media handles.
  2. Follow all participating organizations, including @NKF @AlportSyndFndn @KidneyPatients @PKDFoundation
  3. Whenever appropriate, tag your lawmakers in your tweets, especially tweets that thank them for allowing a visit with you.
  4. The text of your tweet must be under 280 characters. Twitter’s character limit excludes space for link and/or photo, so you can add those freely even after the character count of your tweet has reached 280.
  5. Add photos and videos of your visits with lawmakers!
  6. Be sure to write your hometown at the end of your Tweet so they know you are a constituent!

[/vc_column_text][vc_single_image image=”4772″ img_size=”medium” qode_css_animation=”” css=”.vc_custom_1519240274358{padding-top: 50px !important;}”][/vc_accordion_tab][vc_accordion_tab title=”Sample Tweets Before The Summit” title_color=”#f15e22″][vc_column_text]1. Take a photo of yourself holding a sign that answers the following question: How did kidney disease affect/change your life? (Example: “I have been waiting 5 years for a lifesaving kidney transplant. (First Name, Hometown)”)[/vc_column_text][vc_empty_space height=”20″][vc_single_image image=”4773″ img_size=”medium” qode_css_animation=””][vc_empty_space height=”20″][vc_column_text]2. Starting the week of February 25th, tweet the photo at your legislator using the hashtag #MyKidneysMyLife in the weeks before the Summit and tie it to one of the below national statistics or state statistics found on your state’s fact sheet:

[/vc_column_text][vc_empty_space height=”20″][vc_column_text]3. Use these the following additional tweets:

[/vc_column_text][vc_empty_space height=”20″][vc_column_text]10 year-old singing sensation and America’s Got Talent runner up Angelica Hale will be joining us at the Summit this year! She will be part of two Facebook Live events that will include an interview with the members of Congress and a live performance from the evening reception. Please use the following sample tweets to thank Angelica for joining us and advocating on behalf of kidney patients.

 

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[/vc_column_text][/vc_accordion_tab][vc_accordion_tab title=”Facebook Tips” title_color=”#f15e22″][vc_row_inner row_type=”row” type=”full_width” text_align=”left” css_animation=””][vc_column_inner][vc_column_text]

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  1. National Kidney Foundation
  2. Alport Syndrome Foundation of USA
  3. American Association of Kidney Patients
  4. PKD Foundation

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  1. Post photos and videos from the Summit to your Facebook wall.
  2. When sharing to your own wall, tag your lawmakers in the post by using the “@” symbol before typing their name (or the name of their Facebook page).
  3. Post photos and videos to the Facebook walls of your lawmakers when applicable.
  4. Be sure to write your hometown at the end of your post so they know you are a constituent!

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  1. Looking forward to joining 100 kidney patient advocates for the National Kidney Foundation’s 2019 Kidney Patient Summit and meeting @[YourREP/SEN] to urge members of Congress to support specific legislative priorities that seek to improve early detection, care and outcomes for people with chronic kidney disease. http://bit.ly/2DMVZaR #MyKidneysMyLife – (First Name, Hometown)
  2. I’m on my way to Washington, D.C., for the National Kidney Foundation’s 2019 Kidney Patient Summit! I will be sitting down with @[YourREP/SEN] to tell him/her that kidney disease should be a national priority. http://bit.ly/2DMVZaR #MyKidneysMyLife – (First Name, Hometown)

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  1. I’m in Washington, D.C., this week to push @[YourREP/SEN] on kidney disease funding initiatives. If you don’t know why this is so important to me, [INSERT PERSONAL STORY]. You can also help by becoming a kidney disease advocate: https://bit.ly/2tr5xoC #MyKidneysMyLife – (First Name, Hometown)
  2. @[YourREP/SEN] I’m in Washington, D.C. with nearly 100 kidney advocates to challenge Congress to tackle kidney disease! Find out more about this important initiative. https://bit.ly/2tr5xoC #MyKidneysMyLife  – (First Name, Hometown)  Note: [INCLUDE GROUP PHOTO OF ALL ADVOCATES]
  3. @[YourREP/SEN] March is National Kidney Month and I am honored to help raise awareness about kidney disease at the National Kidney Foundation’s annual Kidney Patient Summit in Washington, D.C. Coming to the Kidney Patient Summit is personal for me. I want to be heard and affect change for those suffering from kidney disease. https://bit.ly/2tr5xoC #MyKidneysMyLife – (First Name, Hometown)
  4. I’m ready to meet with @[YourREP/SEN] to discuss kidney disease research priorities during the https://bit.ly/2tr5xoC #MyKidneysMyLife – (First Name, Hometown)  Note: [INCLUDE PHOTO] 
  5. Thank you @[YourREP/SEN] for agreeing to talk about [YOUR ISSUE] during our meeting at the National Kidney Foundation’s Kidney Patient Summit. https://bit.ly/2tr5xoC #MyKidneysMyLife – (First Name, Hometown)

[/vc_column_text][/vc_accordion_tab][vc_accordion_tab title=”Images” title_color=”#f15e22″][vc_column_text]It’s best to use your own photos and video in your social media activity. If you need an additional supporting image, you may download the one below.

Twitter and Facebook: [/vc_column_text][vc_empty_space][vc_single_image image=”4805″ img_size=”medium” alignment=”center” onclick=”img_link_large” img_link_target=”_blank” qode_css_animation=””][vc_empty_space][vc_single_image image=”100043″ img_size=”medium” alignment=”center” onclick=”img_link_large” img_link_target=”_blank” qode_css_animation=””][vc_empty_space][vc_single_image image=”100044″ img_size=”medium” alignment=”center” onclick=”img_link_large” img_link_target=”_blank” qode_css_animation=””][vc_empty_space][vc_column_text]Instagram: [/vc_column_text][vc_empty_space][vc_single_image image=”4808″ img_size=”medium” alignment=”center” onclick=”img_link_large” img_link_target=”_blank” qode_css_animation=””][vc_empty_space][/vc_accordion_tab][vc_accordion_tab title=”Photo and Video Tips” title_color=”#f15e22″][vc_column_text]We encourage you to take photos or videos with your smartphone when participating in advocacy events.[/vc_column_text][vc_column_text css=”.vc_custom_1550265831974{padding-top: 10px !important;padding-bottom: 20px !important;}”]

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